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Monday, June 7, 2021

Societal and cultural aspects of autism

From Wikipedia, the free encyclopedia

Societal and cultural aspects of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the neurodiversity movement and the autism cure movement. The neurodiversity movement believes autism is a different way of being and advocates against a cure. On the other hand, the autism cure movement advocates for a cure. There are many autism-related events and celebrations; including World Autism Awareness Day, Autism Sunday and Autistic Pride Day. Autism is diagnosed more frequently in males than in females.

Terminology

Although some prefer to use the person-first terminology "person with autism," most members of the autistic community prefer identity-first terminology, such as autistic person or autistic in formal English, to stress that autism is a part of their identity rather than a disease they have. In addition, phrases like suffers from autism are objectionable to many people.

The autistic community has developed abbreviations for commonly used terms, such as:

  • Aspie – a person with Asperger syndrome.
  • Autie – an autistic person. It can be contrasted with aspie to refer to those specifically diagnosed with classic autism or another autism spectrum disorder.
  • Autistics and Cousins (AC) – a cover term including aspies, auties, and their "cousins", i.e. people with some autistic traits but no formal diagnosis.
  • Curebie – a person with the desire to cure autism. This term is highly derogatory.
  • Neurodiversity – tolerance of people regardless of neurological makeup.
  • Neurotypical (NT) – a person who does not have any developmental or neurological disorders. Often used to describe an individual who is not on the autism spectrum.
  • Allistic – a person who is not autistic but may or may not be neurodiverse in other ways, for example, a dyslexic person, or someone with ADHD. Originally and commonly, however, it is used satirically to describe those without autism.

Autism spectrum disorders; DSM-V; Diagnostic criteria-Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) is the 2013 update to the American Psychiatric Association's (APA) classification and diagnostic tool. In the United States, the DSM serves as a universal authority for psychiatric diagnosis.

Overview

Autistic adults

Communication and social problems often cause difficulties in many areas of an autistic adult's life. A 2008 study found that adults with ASD commonly experience difficulty starting social interactions, longing for greater intimacy, a profound sense of isolation, and effort to develop greater social or self-awareness.

A much smaller proportion of adult autistics marry than the general population. It has been hypothesized that autistic people are subject to assortative mating; they tend to pair with each other and raise autistic offspring. This hypothesis has been publicized in the popular press, but has not been empirically tested.

British psychologist Simon Baron-Cohen said that an increasingly technological society has opened up niches for people with Asperger syndrome, who may choose fields that are "highly systematised and predictable." People with AS could do well in workplace roles that are "system-centered, and connect with the nitty-gritty detail of the product or the system."

Autistic savants

An autistic savant is an autistic person with extreme talent in one or more areas of study. Although there is a common association between savant syndrome and autism (an association made popular by the 1988 film Rain Man), most autistic people are not savants and savantism is not unique to autistic people, though there does seem to be some relation. 1 in 10 autistic people may have notable abilities, but prodigious savants like Stephen Wiltshire are very rare; only about 100 such people have been described/identified in the century since savants were first identified, and there are only about 25 living identified prodigious savants worldwide.

Gender aspects

Autistic women

Autism is thought of as a condition mostly affecting males, with males up to four times more likely than females to be diagnosed as autistic and among those with Asperger syndrome or "high functioning autism", males are up to ten times more likely to be diagnosed. This may be due to the fact that many of the diagnostic tools used to diagnose autism have been crafted through the observation of males on the autism spectrum and are therefore more likely to identify men and boys with autism then their female counterparts. For many autistic females the lack of diagnosis or a late diagnosis results in them missing out on supports and interventions that are most valuable when implemented at a younger age. For those females who do receive a diagnosis and are provided with those supports, often have to face the many of them have been created with males in mind and may not acknowledge the physical, psychological and societal differences that females face. Some autistic women find themselves misdiagnosed with personality disorders, such as borderline personality disorder, avoidant personality disorder and schizoid personality disorder. Autistic females are "research orphans" according to Yale's Ami Klin; some drugs used to treat anxiety or hyperactivity that may accompany autism are rarely tested on autistic females. Autism may express differently in the sexes, with many females on the spectrum presenting more subtly then males and may be more adept at developing more sophisticated social masking behaviours, as such females with more prominent difficulties are more likely to be diagnosed then those who present differently. Autistic females are more likely to develop a more sophisticated social camouflage for a variety of reasons. One theory as to why is that women as a whole face more complex social expectations then men, creating a greater need to "prepare more thoroughly for social situations, or risk ostracism". Another theory suggests that women on the spectrum have a more inborn need for social interaction then their male counterparts, leading many women and girls to be more invested in creating social camouflage strategies. These strategies are developed in a variety of ways such as, observing and copying the social interactions of those around them as well as creating strategies to attempt to "go undetected". These coping mechanisms can take an immense amount of time and energy to learn and practice and can as Dr. Shana Nicols states "more often then not lead to exhaustion, withdrawal, anxiety, selective mutism and depression". Females may be more concerned with how they are viewed by peers and the failure to connect with people outside of their immediate family could lead to severe anxiety or clinical depression. Autistic girls who have "normal" intelligence may be more socially disadvantaged than males because of the "rising level of social interaction that comes in middle school," when girls' "friendships often hinge on attention to feelings and lots of rapid and nuanced communication." Autistic girls may suffer additionally by being placed in specialized educational programs, where they will be surrounded by males and further isolated from female social contacts. Females on the autism spectrum often "internalize feelings of frustration and failure" and are believed to suffer higher rates of certain comorbidities such as anxiety and depression (36 and 34 percent respectively), due in large part to the desire for along with the difficulties in finding social inclusion along with other social and sensory challenges. Lack of diagnosis can also lead autistic females to have higher rates of depression, anxiety and self-esteem issues as they are left without a clear understanding as to why they do not "fit in" with their peers. Females on the spectrum also seem to have higher rates of eating disorders, such as anorexia then other females. This may be related to social isolation and elevated levels of anxiety along with a need to control their environment more fully. Although both males and females on the spectrum have a higher risk of experiencing bullying, these experiences often present differently based on gender. Although sample sizes are too small to draw firm conclusions, one study suggests that autistic women are less likely than males over the long term to marry, have families, go to college, have careers and live independently. An intense interest in specific topics plays a significant factor in the lives of those on the autism spectrum of both genders. Females on the spectrum may focus on different topics then their male counterparts; autistic females rarely have interests in numbers or have stores of specialized knowledge, the intense interests of autistic females can be overlooked as they are often seen to be more applicable to a broader section of society. Both males and females with autism deal with the same core symptom, but when those symptoms are mixed with ideas of gender, they can offer very different lived experiences for females then their male counterparts. The profile of autism may change as more is understood about females, whose autism may go undiagnosed.

Other issues related to gender

In recent years, some people have suggested links between autism and transgender people. This issue has not been without controversy, as the issue is open to confusion; it is currently unclear whether this correlation exists due to an innate characteristic of autism that may also cause unusual discrepancies in sex or gender, or whether it is merely the result of exposing a group of people who experience difficulty in abiding by social norms, including those related to gender, to sexism and gender stereotypes.

Relationships with animals

Temple Grandin

Temple Grandin, autistic designer of cattle handling systems, said that one reason she can easily figure out how a cow would react is because autistic people can easily "think the way that animals think." According to Grandin, animals do not have "complex emotions such as shame or guilt" and they do not think in language. She says that, although not everything about animals is like an autistic person, the similarity is that they think visually and without language. She says people do not make this connection because the study of autism and the study of animal behavior are parallel disciplines involving different individuals. Despite these similarities, the degree to which autistic individuals can be said to think like animals remains undetermined; non-human animals, as well as humans, have evolved cognitive specializations that may or may not share characteristics with other species.

Dawn Prince-Hughes, diagnosed with Asperger's, describes her observations of gorillas in Songs of the Gorilla Nation.

Asperger syndrome and interpersonal relationships

Individuals with Asperger syndrome (AS) may develop problems in their abilities to engage successfully in interpersonal relationships.

Social impact

Asperger syndrome may lead to problems in social interaction with peers. These problems can be severe or mild depending on the individual. People with AS are often the target of bullying behavior. Children with AS are often the target of bullying at school due to their idiosyncratic behavior, precise language, unusual interests, and impaired ability to perceive and respond in socially expected ways to nonverbal cues, particularly in interpersonal conflict, which results in them being sought out by classmates and rejected. People with AS may be overly literal and may have difficulty interpreting and responding to sarcasm, banter, or metaphorical speech. Difficulties with social interaction may also manifest in a lack of play with other children.

The above problems can even arise in the family; given an unfavorable family environment, the child may be subject to emotional abuse. A child, teen, or adult with AS is often puzzled by this mistreatment, unaware of what has been done incorrectly. Unlike with other pervasive development disorders, most persons with AS want to be social, but fail to socialize successfully, which can lead to later withdrawal and asocial behavior, especially in adolescence. At this stage of life especially, they risk being drawn into unsuitable and inappropriate friendships and social groups. People with AS often interact better with those considerably older or younger than themselves, rather than those within their own age group.

Children with AS often display advanced abilities for their age in language, reading, mathematics, spatial skills, or music—sometimes into the "gifted" range—but this may be counterbalanced by considerable delays in other developmental areas, like verbal and nonverbal communication or some lack of motor coordination. This combination of traits can lead to problems with teachers and other authority figures. A child with AS might be regarded by teachers as a "problem child" or a "poor performer." The child's extremely low tolerance for what they perceive to be ordinary and mundane tasks, such as typical homework assignments, can easily become frustrating; a teacher may well consider the child arrogant, spiteful, and insubordinate. Lack of support and understanding, in combination with the child's anxieties, can result in problematic behavior (such as severe tantrums, violent and angry outbursts, and withdrawal).

Employment for those with AS may be difficult. The impaired social skills can be likely to interfere with the interview process—and people with often superior skills can be passed over due to these conflicts with interviewers. Once hired, people with AS may continue to have difficulty with interpersonal communications. Homelessness is very common among people with AS.

While some researchers have suggested that autistic individuals are less likely to self-enhance their reputation compared to those without autism, others argue that autistic individuals do not have less of a desire for self-enhancement than non-autistic individuals.

Difficulties in relationships

Two traits sometimes found in AS individuals are mind-blindness (the inability to predict the beliefs and intentions of others) and alexithymia (the inability to identify and interpret emotional signals in oneself or others), which reduce the ability to be empathetically attuned to others. Alexithymia in AS functions as an independent variable relying on different neural networks than those implicated in theory of mind. In fact, lack of Theory of Mind in AS may be a result of a lack of information available to the mind due to the operation of the alexithymic deficit.

A second issue related to alexithymia involves the inability to identify and modulate strong emotions such as sadness or anger, which leaves the individual prone to "sudden affective outbursts such as crying or rage". According to Tony Attwood, the inability to express feelings using words may also predispose the individual to use physical acts to articulate the mood and release the emotional energy.

People with AS report a feeling of being detached against their will from the world around them ("on the outside looking in"). They may have difficulty finding a life partner or getting married due to poor social skills. The complexity and inconsistency of the social world can pose an extreme challenge for individuals with AS. In the UK Asperger's is covered by the Disability Discrimination Act; those with AS who get treated badly because of it may have some redress. The first case was Hewett v Motorola 2004 (sometimes referred to as Hewitt) and the second was Isles v Ealing Council. The same applies in the United States with the Americans with Disabilities Act, amended in 2008 to include autism spectrum disorders.

The intense focus and tendency to work things out logically often grants people with AS a high level of ability in their field of interest. When these special interests coincide with a materially or socially useful task, the person with AS can lead a profitable career and a fulfilled life. The child obsessed with a specific area may succeed in employment related to that area.

According to Elizabeth Fein, the dynamic of role-playing games is especially positive and attractive to people on the autism spectrum. The social information exchanged in these games are explicit, top-down and systematic and they follow a set of shared abstract rules. Baez and Rattazzi showed that interpreting the implicit social information of daily life is difficult for autistics.

Autism rights movement

Autism rainbow infinity
The rainbow-colored infinity symbol represents the diversity of the autism spectrum as well as the greater neurodiversity movement. Opinions are divided on replacing jigsaw puzzle-piece based symbols to represent autism.

The autism rights movement is a social movement within the context of disability rights that emphasizes the concept of neurodiversity, viewing the autism spectrum as a result of natural variations in the human brain rather than a disorder to be cured. The ARM advocates a variety of goals, including greater acceptance of autistic behaviors; therapies that focus on coping skills rather than imitating the behaviors of neurotypical peers; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.

Autism rights or neurodiversity advocates believe that the autism spectrum is genetic and should be accepted as a natural expression of the human genome. This perspective is distinct from two other likewise distinct views: the medical perspective, that autism is caused by a genetic defect and should be addressed by targeting the autism gene(s), and the fringe theory that autism is caused by environmental factors like vaccines and pollution and could be cured by addressing environmental causes.

The movement is controversial. There are a wide variety of both supportive and critical opinions about the movement among people who are autistic or associated with autistic people. A common criticism leveled against autistic activists is that the majority of them are "high-functioning" or have Asperger syndrome and do not represent the views of "low-functioning" autistic people.

Autistic pride

Autistic pride refers to pride in autism and shifting views of autism from "disease" to "difference." Autistic pride emphasizes the innate potential in all human phenotypic expressions and celebrates the diversity various neurological types express.

Autistic pride asserts that autistic people are not impaired or damaged; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.

Curing autism is a controversial and politicized issue. The "autistic community" can be divided into several groups. Some seek a cure for autism—sometimes dubbed as pro-cure—while others consider a cure unnecessary or unethical, or feel that autism conditions are not harmful or detrimental. For example, it may be seen as an evolutionary adaptation to an ecological niche by some environmentalists and the more radical autism rights campaigners.

Autistic culture and community

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John Elder Robison talks about Be Different on Bookbits radio

With the recent increases in autism recognition and new approaches to educating and socializing autistics, an autistic culture has begun to develop. Autistic culture is based on a belief that autism is a unique way of being and not a disorder to be cured. The Aspie world, as it is sometimes called, contains people with Asperger syndrome (AS) and high functioning autism (HFA), and can be linked to three historical trends: the emergence of AS and HFA as labels, the emergence of the disability rights movement, and the rise of the Internet. Autistic communities exist both online and offline; many people use these for support and communication with others like themselves, as the social limitations of autism sometimes make it difficult to make friends, to establish support within general society, and to construct an identity within society.

Because many autistics find it easier to communicate online than in person, a large number of online resources are available. Some autistic individuals learn sign language, participate in online chat rooms, discussion boards, and websites, or use communication devices at autism-community social events such as Autreat. The Internet helps bypass non-verbal cues and emotional sharing that some autistics tend to have difficulty with. It gives autistic individuals a way to communicate and form online communities.

Conducting work, conversation and interviews online in chat rooms, rather than via phone calls or personal contact, help level the playing field for many autistics. A New York Times article said "the impact of the Internet on autistics may one day be compared in magnitude to the spread of sign language among the deaf" because it opens new opportunities for communication by filtering out "sensory overload that impedes communication among autistics."

Globally

Autistic people may be perceived differently from country to country. For example, many Africans have spiritual beliefs about psychiatric disorders, which extends into perceived causes of autism. In one survey of Nigerian pediatric or psychiatric nurses, 40% cited preternatural causes of autism such as ancestral spirits or the action of the devil.

Events and public recognition

World Autism Day

Minnesota governor Mark Dayton declared the World Autism Awareness Day on 2 April 2013

World Autism Day, also called World Autism Awareness Day, is marked on 2 April. It was designated by the United Nations General Assembly at the end of 2007. On 2 April 2009, activists left 150 strollers near Central Park in New York City to raise awareness that one in 150 children is estimated to be autistic. There are many celebration activities all over the world on 2 April—World Autism Day. "Autism knows no geographic boundaries—it affects individuals and families on every continent and in every country," said Suzanne Wright, co-founder of the group Autism Speaks. "The celebration of World Autism Awareness Day is an important way to help the world better understand the scope of this health crisis and the need for compassion and acceptance for those living with autism. This remarkable day—the first of many to come—promises to be a time of great hope and happiness as we work to build a global autism community."

Light It Up Blue

In 2010, Autism Speaks launched the Light It Up Blue initiative. Light It Up Blue sees prominent buildings across the world—including the Empire State Building in New York City and the CN Tower in Toronto, Ontario, Canada—turn their lights blue to raise awareness for autism and to commemorate World Autism Awareness Day. However, the Autism Speaks group is not well-received by most autism rights activists, due to their lack of incorporation of perspectives of actual autistic people in their work, and their focus on searching for a 'cure'.

Autism Sunday

Autism Sunday is a global Christian event, observed on the second Sunday of February. It is supported by church leaders and organisations around the world. The event started as a small idea in the front room of British autism campaigners, Ivan and Charika Corea. It is now a huge event celebrated in many countries. Autism Sunday was launched in London in 2002 with a historic service at St. Paul's Cathedral.

Autism Awareness Year

Autism awareness ribbon - not supported by many autistic people.

The year 2002 was declared Autism Awareness Year in the United Kingdom—this idea was initiated by Ivan and Charika Corea, parents of an autistic child, Charin. Autism Awareness Year was led by the British Institute of Brain Injured Children, Disabilities Trust, The Shirley Foundation, National Autistic Society, Autism London and 800 organizations in the United Kingdom. It had the personal backing of British Prime Minister Tony Blair. This was the first ever occasion of partnership working on autism on such a huge scale. 2002 Autism Awareness Year helped raise awareness of the serious issues concerning autism and Asperger's Syndrome across the United Kingdom. A major conference, Autism 2002 was held at the King's Fund in London with debates in the House of Commons and the House of Lords in Westminster. Autism awareness ribbons were worn to mark the year.

British autism advocates want autistic people acknowledged as a minority rather than as disabled, because they say that "disability discrimination laws don't protect those who are not disabled but who 'still have something that makes them look or act differently from other people.'" But the autism community is split over this issue, and some view this notion as radical.

Autistic Pride Day

Autistic Pride Day is an Aspies For Freedom initiative celebrated on 18 June each year. It is a day for celebrating the neurodiversity of autistic people. Modeled after gay pride events, they often compare their efforts to the civil rights and LGBT social movements.

Autistics Speaking Day

Autistics Speaking Day (ASDay), 1 November, is a self-advocacy campaign run by autistic people to raise awareness and challenge negative stereotypes about autism by speaking for themselves and sharing their stories. The first one was held in 2010. According to one of the founders, Corina Becker, the main goal of ASDay is "to acknowledge our difficulties while sharing our strengths, passions, and interests." The idea for the event developed out of opposition to a "Communication Shutdown" fundraising campaign led by Autism Speaks that year, which had asked for participants to "simulate" having autism by staying away from all forms of online communication for one day.

Autism Acceptance Project

In 2006 the Autism Acceptance Project was founded by Estée Klar, the mother of an autistic child, with help from an autistic advisory and board. The project's mission statement is, "The Autism Acceptance Project is dedicated to promoting acceptance of and accommodations for autistic people in society." The project is primarily supported by autistic people and their supporters. The goal is to create a positive perspective of autism and to accept autism as a part of life with its trials and tribulations. The project is also working to enable autistic people to gain the right to advocate for themselves (along with their supporters) in all policy decision formats from government to a general committee. By providing an abundance of resources, the project is able to reach a multitude of audiences using a Web site along with lectures and exhibitions.

Autism Acceptance Day

In 2011, the first Autism Acceptance Day celebrations were organized by Paula Durbin Westby, as a response to traditional "Autism Awareness" campaigns which the Autistic community found harmful and insufficient. Autism Acceptance Day is now held every April. "Awareness" focuses on informing others of the existence of autism while "acceptance" pushes towards validating and honoring the autism community. By providing tools and educational material, people are encouraged to embrace the challenges autistic people face and celebrate their strengths. Rather than making autism into a crippling disability, acceptance integrates those on the autistic spectrum into everyday society. Instead of encouraging people to wear blue as Autism Awareness Day does, Autism Acceptance Day encourages people to wear red.

Autreat

At Autreat—an annual autistic gathering—participants compared their movement to gay rights activists, or the Deaf culture, where sign language is preferred over surgery that might restore hearing. Other local organizations have also arisen: for example, a European counterpart, Autscape, was created around 2005.

Twainbow

Twainbow is an advocacy organization that provides awareness, education, and support for autistic people who identify as lesbian/gay/bisexual/transgender (LGBT). According to its founder, "Twainbow is a portmanteau of 'twain' (meaning 'two') and 'rainbow.' Those who are both LGBT and autistic live under two rainbows—the rainbow flag and the autism spectrum." The company also introduced an LGBT-autism Gay Pride flag representing the population.

History

Donald Triplett was the first person diagnosed with autism. He was diagnosed by Kanner after being first examined in 1938, and was labeled as "case 1". Triplett was noted for his savant abilities, particularly being able to name musical notes played on a piano and to mentally multiply numbers. His father, Oliver, described him as socially withdrawn but interested in number patterns, music notes, letters of the alphabet, and U.S. president pictures. By the age of 2, he had the ability to recite the 23rd Psalm and memorized 25 questions and answers from the Presbyterian catechism. He was also interested in creating musical chords.

Scholarship

Autism spectrum disorders received increasing attention from social-science scholars in the early 2000s, with the goals of improving support services and therapies, arguing that autism should be tolerated as a difference not a disorder, and by how autism affects the definition of personhood and identity. Sociological research has also investigated how social institutions, particularly families, cope with the challenges associated with autism.

Media portrayals

Much of the public perception of autism is based on its portrayals in biographies, movies, novels, and TV series. Many of these portrayals have been inaccurate, and have contributed to a divergence between public perception and the clinical reality of autism. For example, in the movie Mozart and the Whale (2005), the opening scene gives four clues that a leading character has Asperger syndrome, and two of these clues are extraordinary savant skills. The savant skills are not needed in the film, but in the movies savant skills have become a stereotype for the autism spectrum, because of the incorrect assertion that most autistic people are savants.

Some works from the 1970s have autistic characters, who are rarely labeled. In contrast, in the BBC2 television miniseries The Politician's Husband (2013), the impact of Noah Hoynes' Aspergers on the boy's behavior and on his family, and steps Noah's loved ones take to accommodate and address it, are prominent plot points in all three episodes.

Popular media have depicted special talents of some autistic people, including exceptional abilities as seen in the 1988 movie Rain Man. Such portrayals have been criticized by both scientific studies and media analysts over the years for fostering a pigeonholing image of autism that leads to false expectations about real-life autistic individuals, with Rain Man being singled out for popularizing it.

Since the 1970s, fictional portrayals of autistic people, Asperger syndrome, and other ASCs have become more frequent. Public perception of autism is often based on these fictional portrayals in novels, biographies, movies, and TV series. These depictions of autism in media today are often made in a way that brings pity to the public and their concern of the topic, because their viewpoint is never actually shown, leaving the public without knowledge of autism and its diagnosis. Portrayals in the media of characters with atypical abilities (for example, the ability to multiply large numbers without a calculator) may be misinterpreted by viewers as accurate portrayals of all autistic people and of autism itself. Additionally, the media frequently depicts autism as only affecting children, which promotes the misconception that autism does not affect adults.

Notable individuals

Some notable figures on the autism spectrum include American food animal handling systems designer and author Temple Grandin, American Pulitzer Prize-winning music critic and author Tim Page, Australian musician, lead singer and only constant member of rock band the Vines Craig Nicholls, English actor and filmmaker Paddy Considine and Swedish environmental activist Greta Thunberg are autistic.

Thunberg, who in August 2018 started the "School strike for climate" movement, has explained how the "gift" of living with Asperger syndrome helps her "see things from outside the box" when it comes to climate change. In an interview with presenter Nick Robinson on BBC Radio 4's Today, the then-16-year-old activist said that autism helps her see things in "black and white". She went on to say:

It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box. I don't easily fall for lies, I can see through things. I don't think I would be interested in the climate at all, if I had been like everyone else. Many people say that it doesn't matter, you can cheat sometimes. But I can't do that. You can't be a little bit sustainable. Either you're sustainable, or not sustainable. For way too long the politicians and people in power have got away with not doing anything at all to fight the climate crisis and ecological crisis, but we will make sure that they will not get away with it any longer.

Scottish singer Susan Boyle was diagnosed with Aspergers at the age of 51. Boyle was originally believed to have suffered slight brain damage at birth. Boyle rose to fame after appearing on the talent show Britain's Got Talent in 2009. Her debut album I Dreamed a dream, released in 2009, became the fastest selling debut by a UK artist of all time. American actress Daryl Hannah, star of movies such as Splash, Steel Magnolias and Wall Street, was diagnosed as being on the autism spectrum as a child. Diagnosed at fifteen, Heather Kuzmich appeared on America's Next Top Model in 2007. Although she did not win the competition, Kuzmich was voted the viewers' favourite eight weeks in a row. She has since been signed to Elite Model Management. New Zealand-born musician Ladyhawke and gold medal winning British Paralympic swimmer Jessica-Jane Applegate are also autistic.

Additionally, media speculation of contemporary figures as being on the autism spectrum has become popular in recent times. New York magazine reported some examples, which included that Time magazine suggested that Bill Gates is autistic, and that a biographer of Warren Buffett wrote that his prodigious memory and "fascination with numbers" give him "a vaguely autistic aura." The magazine also reported that on Celebrity Rehab, Dr. Drew Pinsky deemed basketball player Dennis Rodman a candidate for an Asperger's diagnosis, and the UCLA specialist consulted "seemed to concur". Nora Ephron criticized these conclusions, writing that popular speculative diagnoses suggest autism is "an epidemic, or else a wildly over-diagnosed thing that there used to be other words for." The practice of diagnosing autism in these cases is controversial.

Some historical personalities are also the subject of speculation about being autistic, e.g. Michelangelo.

Sunday, June 6, 2021

Temple Grandin

From Wikipedia, the free encyclopedia
 
Temple Grandin
TempleGrandin.jpg
Temple Grandin in 2011
Born
Mary Temple Grandin

August 29, 1947 (age 73)
Alma mater
Known for
Scientific career
Fields
InstitutionsColorado State University
Websitetemplegrandin.com Edit this at Wikidata

Mary Temple Grandin (born August 29, 1947) is an American scientist and animal behavourist. She is a prominent proponent for the humane treatment of livestock for slaughter and author of more than 60 scientific papers on animal behavior. Grandin is a consultant to the livestock industry, where she offers advice on animal behavior, and is also an autism spokesperson.

Grandin is one of the first individuals on the autism spectrum to document the insights she gained from her personal experience of autism. She is currently a faculty member with Animal Sciences in the College of Agricultural Sciences at Colorado State University.

In 2010, Time 100, an annual list of the 100 most influential people in the world, named her in the "Heroes" category. She was the subject of the Emmy- and Golden Globe-winning semi-biographical film Temple Grandin. Grandin has been an outspoken proponent of autism rights and neurodiversity movements.

Early life

Family

Mary Temple Grandin was born in Boston, Massachusetts, into a very wealthy family. One of the employees of the family also was named Mary, so Grandin was referred to by her middle name, Temple, to avoid confusion. Her mother is Anna Eustacia Purves (now Cutler), an actress, singer, and granddaughter of John Coleman Purves (co-inventor for the autopilot aviation system). She also has a degree in English from Harvard University. Her father was Richard McCurdy Grandin, a real estate agent and heir to the largest corporate wheat farm business in America at the time, Grandin Farms. Grandin's parents divorced when she was 15, and her mother eventually went on to marry Ben Cutler, a renowned New York saxophonist, in 1965, when Grandin was 18 years old. Her father, Richard Grandin, died in California in 1993.

Grandin has three younger siblings: two sisters and a brother. Grandin has described one of her sisters as being dyslexic. Her younger sister is an artist, her other sister is a sculptor, and her brother is a banker. John Livingston Grandin (Temple's paternal great-grandfather) and his brother William James Grandin, were French Huguenots who drilled for oil. He intended to cut a deal with John D. Rockefeller in a meeting, but the latter kept him waiting too long so he walked out before Rockefeller arrived. Then the brothers went into banking and when Jay Cooke's firm collapsed they received thousands of acres of undeveloped land in North Dakota as debt collateral. They set up wheat farming in the Red River Valley and housed the workers in dormitories. The town of Grandin, North Dakota, is named after John Livingston Grandin.

Although raised in the Episcopal Church, early on Temple Grandin gave up on a belief in a personal deity or intention in favor of what she considers a more scientific perspective.

Diagnosis

Grandin was not formally diagnosed with autism until her adulthood. As a two-year-old, the only formal diagnosis given to Grandin was "brain damage", a subsequent finding corroborated through cerebral imaging at the University of Utah by the time she turned 63 in 2010. While Grandin was still in her mid-teens, her mother chanced upon a diagnostic checklist for autism. After reviewing the checklist, Grandin's mother hypothesised that Grandin's symptoms were best explained by the disorder and was later determined to be an autistic savant, but a formal diagnosis consistent with being on the autism spectrum was made only when Grandin was in her forties.

Early childhood

Her mother, Eustacia, took Grandin to the world's leading special needs researchers at the Boston Children's Hospital, with the hope of unearthing an alternative to institutionalization. Grandin's mother eventually located a neurologist who suggested a trial of speech therapy. A speech therapist was hired and Grandin received personalized training from the age of two and a half. A nanny was hired when Grandin was aged three to play educational games for hours with her. Grandin started kindergarten in Dedham Country Day School. Her teachers and class strove to create an environment to accommodate Grandin's needs and sensitivities.

Grandin considers herself fortunate to have had supportive mentors from elementary school onward. Even so, Grandin states that junior high and high school were the most unpleasant times of her life.

The medical advice at the time for a diagnosis of autism was to recommend institutionalization, a measure that caused a bitter rift of opinion between Grandin's parents. Her father was keen to follow this advice while her mother was strongly opposed to the idea as it likely would have caused her to never be able to see her daughter again.

Middle school and high school

Grandin attended Beaver Country Day School from seventh grade to ninth grade. She was expelled at the age of 14 for throwing a book at a schoolmate who had taunted her. Grandin has described herself as the "nerdy kid" whom everyone ridiculed. She has described occasions when she walked down the hallways and her fellow students would taunt her by saying "tape recorder" because of her habit of repetitive speech. Grandin states, "I could laugh about it now, but back then it really hurt."

The year after her expulsion, Grandin's parents divorced. Three years later, Grandin's mother married Ben Cutler, a New York saxophonist. At 15, Grandin spent a summer on the Arizona ranch of Ben Cutler's sister, Ann, and this would become a formative experience toward her subsequent career interest.

Following her expulsion from Beaver Country Day School (reports vary on the name of the school Grandin was expelled from, with Grandin noting it to be Cherry Falls Girls' School in her first book, Emergence: Labelled Autistic), Grandin's mother placed her in Mountain Country School (now known as Hampshire Country School), a private boarding school in Rindge, New Hampshire, for children with behavioral problems. It was here that Grandin met William Carlock, a science teacher who had worked for NASA. He became her mentor and helped significantly toward building up her self-confidence.

It was Carlock who encouraged Grandin to develop her idea to build her hug box (referred to as a "squeeze machine" by Grandin) when she returned from her aunt's farm in Arizona in her senior year of high school. At the age of 18 when she was still attending Mountain Country School, with Carlock's assistance Grandin built the hug box. Carlock's supportive role in Grandin's life continued even after she left Mountain Country School. For example, when Grandin was facing criticism for her hug box at Franklin Pierce College, it was Carlock who suggested that Grandin undertake scientific experiments to evaluate the efficacy of the device. It was his constant guidance to Grandin to refocus the rigid obsessions she experienced with the hug box into a productive assignment, that subsequently, allowed this study undertaken by Grandin to be widely cited as evidence of Grandin's resourcefulness.

Higher education

After she graduated from Mountain Country School in 1966, Grandin went on to earn her bachelor's degree in human psychology from Franklin Pierce College in 1970, a master's degree in animal science from Arizona State University in 1975, and a doctoral degree in animal science from the University of Illinois at Urbana–Champaign in 1989.

Career

Grandin is a prominent and widely cited proponent for the humane treatment of livestock for slaughter. She is internationally famous as a spokesperson on autism as well.

Autism spectrum

Steve Silberman, in his book NeuroTribes, wrote that Temple Grandin helped break down years of shame and stigma because she was one of the first adults to publicly disclose that she was autistic. Bernard Rimland, a father of a son with autism and author of the book Infantile Autism, wrote the foreword to Grandin's first book Emergence: Labeled Autistic. Her book was published in 1986. Dr. Rimland wrote "Temple's ability to convey to the reader her innermost feelings and fears, coupled with her capacity for explaining mental processes will give the reader an insight into autism that very few have been able to achieve."

In her later book, Thinking in Pictures, published in 1995, the neurologist Oliver Sacks wrote at the end of the foreword that the book provided "a bridge between our world and hers, and allows us to glimpse into a quite other sort of mind."

In her early writings, Grandin characterized herself as a recovered autistic and, in his foreword, Bernard Rimland used the term recovered autistic individual. In her later writings she has abandoned this characterization. Steve Silberman wrote, "It became obvious to her, however, that she was not recovered but had learned with great effort to adapt to the social norms of the people around her."

When her book Thinking in Pictures was written in 1995, Grandin thought that all individuals with autism thought in photographic-specific images the way she did. By the time the expanded edition was published in 2006, she had realized that it had been wrong to presume that every person with autism processed information in the same way she did. In the 2006 edition, she wrote that there were three types of specialized thinking. They were: 1. Visual Thinkers like she is, who think in photographically-specific images. 2. Music and Math Thinkers – who think in patterns and may be good at mathematics, chess, and programming computers. 3. Verbal Logic Thinkers – who think in word details, and she noted that their favorite subject may be history.

In one of her later books, The Autistic Brain: Thinking Across the Spectrum, the concept of three different types of thinking by autistic individuals is expanded. This book was published in 2013. An influential book that helped her to develop her concept of pattern thinking was Clara Claiborne Park's book entitled Exiting Nirvana: A Daughter's Life with Autism. It was published in 2001. The Autistic Brain also contains an extensive review of scientific studies that provide evidence that object-visual thinking is different from spatial-visualization abilities.

Grandin became well-known beyond the American autistic community, after being described by Oliver Sacks in the title narrative of his book An Anthropologist on Mars (1995), for which he won a Polk Award. The title is derived from Grandin's characterization of how she feels around neurotypical people. In the mid-1980s Grandin first spoke in public about autism at the request of Ruth C. Sullivan, one of the founders of the Autism Society of America (ASA). Sullivan writes:

I first met Temple in the mid-1980s [at the] annual [ASA] conference. Standing on the periphery of the group was a tall young woman who was obviously interested in the discussions. She seemed shy and pleasant, but mostly she just listened. I learned her name was Temple Grandin. It wasn't until later in the week that I realized she was someone with autism. I approached her and asked if she'd be willing to speak at the next year's [ASA] conference. She agreed. The next year Temple first addressed an [ASA] audience. People were standing at least three deep. The audience couldn't get enough of her. Here, for the first time, was someone who could tell us from her own experience, what it was like to be extremely sound sensitive ("like being tied to the rail and the train's coming"). She was asked many questions: "Why does my son do so much spinning?" "Why does he hold his hands to his ears?" "Why doesn't he look at me?" She spoke from her own experience, and her insight was impressive. There were tears in more than one set of eyes that day. Temple quickly became a much sought-after speaker in the autism community.

Based on personal experience, Grandin advocates early intervention to address autism and supportive teachers, who can direct fixations of the child with autism in fruitful directions. She has described her hypersensitivity to noise and other sensory stimuli. She says words are her second language and that she thinks "totally in pictures", using her vast visual memory to translate information into a mental slideshow of images that may be manipulated or correlated. Grandin attributes her success as a humane livestock facility designer to her ability to recall detail, which is a characteristic of her visual memory. Grandin compares her memory to full-length movies in her head, that may be replayed at will, allowing her to notice small details. She also is able to view her memories using slightly different contexts by changing the positions of the lighting and shadows.

As a proponent of neurodiversity, Grandin does not support eliminating autism genes or treating mildly-autistic individuals. However, she believes that autistic children who are severely handicapped need therapy with applied behavioral analysis. Additionally, she has claimed that she only will attend talks given by autistics who can hold down a career.

Handling livestock

In 1980 Grandin published her first two scientific articles on beef cattle behavior during handling: "Livestock Behavior as Related to Handling Facilities Design" in the International Journal for the Study of Animal Problems, Vol. 1, pp. 33–52 and "Observations of Cattle Behavior Applied to the Design of Cattle Handling Facilities", Applied Animal Ethology, Vol. 6, pp. 19–31. She was one of the first scientists to report that animals are sensitive to visual distractions in handling facilities such as shadows, dangling chains, and other environmental details that most people do not notice. When she was awarded her Ph.D. at the University of Illinois, she studied the effects of environmental enrichment on pigs. The title of her dissertation was "Effect of Rearing Environment and Environmental Enrichment on the Behavior and Neural Development in Young Pigs". Grandin expanded her theories in her book, Animals Make Us Human.

In 1993, she edited the first edition of Livestock Handling and Transport. Grandin wrote three chapters and included chapters from contributors from around the world. Subsequent editions of the book were published in 2000, 2007, and 2014. In her academic work as a professor at Colorado State University, her graduate student, Bridgett Voisinet, conducted one of the early studies that demonstrated that cattle who remained calm during handling, had higher weight gains. In 1997, when the paper was published, this was a new concept. The paper is entitled, "Feedlot Cattle with Calm Temperaments Have Higher Average Daily Gains Than Cattle with Excitable Temperaments", published in The Journal of Animal Science, Vol. 75, pp. 892–896.

Another important paper published by Grandin was, "Assessment of Stress During Handling and Transport", Journal of Animal Science, 1997, Vol. 75, pp. 249-257. This paper presented the concept that an animal's previous experiences with handling could have an effect on how it will react to being handled in the future, as a new concept in the animal-handling industry.

A major piece of equipment that Grandin developed was a center track (double rail) conveyor restrainer system for holding cattle during stunning at large beef slaughtering plants. The first system was installed in the mid-1980s for calves and a system for large beef cattle was developed in 1990. This equipment is now being used by many large meat companies. It is described in "Double Rail Restrainer Conveyor for Livestock Handling", first published in the Journal of Agricultural Engineering Research, Vol. 4, pp. 327–338 in 1988, and "Transferring results of behavioral research to industry to improve animal welfare on the farm, ranch, and slaughter plant", Applied Animal Behavior Science, Vol. 8, pp. 215–228, published in 2003.

Grandin also developed an objective, numerical scoring system for assessing animal welfare at slaughtering plants. The use of this scoring system resulted in significant improvements in animal stunning and handling during slaughter. This work is described in "Objective scoring of animal handling and stunning practices in slaughter plants", Journal of the American Veterinary Medical Association, Vol. 212, pp. 3–39, "The feasibility of using vocalization scoring as an indicator of poor welfare during slaughter", Applied Animal Behavior Science, Vol. 56, pp. 121–128, and "Effect of animal welfare audits of slaughter plants by a major fast food company on cattle handling and stunning practices", Journal of the American Veterinary Medical Association, Vol. 216, pp. 848–851.

In 2008, Grandin published Humane Livestock Handling with contributions by Mark Deesing, a long time collaborator with her. The book contains a review of the main aspects of cattle behavior and provides a visual guide in the form of construction plans and diagrams for the implementation of Grandin's ideas relating to humane livestock handling.

Other scientific contributions

Grandin is the author or co-author of more than 60 peer-reviewed scientific papers on a variety of other animal behavior subjects. Some of the other subjects are: the effect of hair whorl position on cattle behavior, the influence of stress prior to slaughter upon meat quality, religious slaughter, mothering behavior of beef cows, cattle temperament, and causes of bruising.

Animal welfare

Grandin has lectured widely about her first-hand experiences of the anxiety of feeling threatened by everything in her surroundings, and of being dismissed and feared, which motivates her work in humane livestock handling processes. She studied the behavior of cattle, how they react to ranchers, movements, objects, and light. Grandin then designed curved corrals she adapted with the intention of reducing stress, panic, and injury in animals being led to slaughter. This has proved to be a further point of criticism and controversy among animal activists who have questioned the congruence of a career built on animal slaughter alongside Grandin's claims of compassion and respect for animals. While her designs are widely used throughout the slaughterhouse industry, her claim of compassion for the animals is that because of her autism she can see the animals' reality from their viewpoint, that when she holds an animal's head in her hands as it is being slaughtered, she feels a deep connection to them.

Her business website promotes improvement of standards for slaughterhouses and livestock farms. The "squeeze machine" is sold at US$4,525 by Therafin Corporation. In 2004, Grandin won a "Proggy" award in the "Visionary" category, from People for the Ethical Treatment of Animals.

One of her notable essays about animal welfare is, "Animals Are Not Things", in which she posits that technically, animals are property in society, but the law ultimately gives them ethical protections or rights. She compares the properties and rights of owning cattle, versus owning screwdrivers, enumerating how both may be used to serve human purposes in many ways, but when it comes to inflicting pain, there is a vital distinction between such "properties", because legally, a person can smash or grind up a screwdriver, but cannot torture an animal.

Her insight into the minds of cattle has taught her to value the changes in details to which animals are particularly sensitive and to use her visualization skills to design thoughtful and humane animal-handling equipment. She was named a fellow of the American Society of Agricultural and Biological Engineers in 2009.

In 2012, when the American beef industry was struggling with public perception of its use and sale of pink slime, Grandin spoke out in support of the food product. She said, "It should be on the market. It should be labeled. We should not be throwing away that much beef."

Grandin's work has attracted the attention of philosophers interested in the moral status of animals. One view found in the academic literature is that Grandin's method of slaughter is a significant positive development for animals, but her attempts to formulate a moral defense of meat-eating have been less successful.

Personal life

Temple Grandin at TED in February 2010

I think using animals for food is an ethical thing to do, but we've got to do it right. We've got to give those animals a decent life, and we've got to give them a painless death. We owe the animals respect.
—Temple Grandin

Grandin says that "the part of other people that has emotional relationships is not part of me", and she has neither married nor had children. She later stated, for example, that she preferred the science fiction, documentary, and thriller genre of films and television shows to more dramatic or romantic ones. Beyond her work in animal science and welfare and autism rights, her interests include horseback riding, science fiction, movies, and biochemistry.

She has noted in her autobiographical works that autism affects every aspect of her life. Grandin has to wear comfortable clothes to counteract her sensory processing disorder and has structured her lifestyle to avoid sensory overload. She regularly takes antidepressants, but no longer uses a squeeze-box (hug machine), the device she invented at the age of 18 as a form of stress relief therapy, stating in February 2010 that: "It broke two years ago, and I never got around to fixing it. I'm into hugging people now."

Honors

In 2010, Grandin was named in the Time 100 list of the one hundred most influential people in the world, in the "Heroes" category. In 2011, she received a Double Helix Medal. She has received honorary degrees from many universities including McGill University in Canada (1999), and the Swedish University of Agricultural Sciences (2009), Carnegie Mellon University in the United States (2012), and Emory University (2016). In 2015, she was named an honorary fellow of the Society for Technical Communication.

In 2011, Grandin was awarded the Ashoka Fellowship.

In 2012, Grandin was inducted into the Colorado Women's Hall of Fame.

In 2012, Grandin was inducted into the Texas Trail of Fame.

In 2012, she was inducted into the Hall of Great Westerners of the National Cowboy & Western Heritage Museum.

Grandin received a Meritorious Achievement Award from the World Organisation for Animal Health (OIE) in 2015.

In 2016, Grandin was inducted into the American Academy of Arts and Sciences.

In 2017, Grandin was inducted into the National Women's Hall of Fame.

In popular culture

Grandin has been featured on major media programs, such as Lisa Davis' It's Your Health, ABC's Primetime Live, the Today Show, Larry King Live, and Fresh Air with Terry Gross. She has been written up in Time magazine, People magazine, Discover magazine, Forbes, and The New York Times. In 2012, Grandin was interviewed on Thriving Canine Radio to discuss "A Different Perspective on Animal Behavior".

She was the subject of the Horizon documentary "The Woman Who Thinks Like a Cow", first broadcast by the BBC on June 8, 2006, and Nick News with Linda Ellerbee in the spring of 2006. She also was the subject of the first episode in the series First Person by Errol Morris.

Grandin is the focus of a semi-biographical HBO film entitled Temple Grandin, starring Claire Danes as Grandin. The film was broadcast on February 6, 2010. The movie was nominated for 15 Primetime Emmy Awards and won seven awards, including Outstanding Television Movie and Outstanding Lead Actress in a Miniseries or Movie for Claire Danes. Grandin was on stage as the award was accepted and she spoke briefly to the audience. Coincidentally, the 62nd Primetime Emmy Awards happened on Grandin's birthday – August 29. On January 16, 2011, at the 68th Golden Globe Awards, Claire Danes won the Golden Globe Award for Best Actress – Miniseries or Television Film.

Grandin was featured in Beautiful Minds: A Voyage Into the Brain, a documentary produced in 2006 by colourfield tell-a-vision, a German company. She was named one of 2010's one hundred most influential people in the world by Time magazine. In 2011, she was featured in an episode of the Science documentary series Ingenious Minds. In 2018, Grandin was featured in the documentary This Business of Autism, which explored autism employment and the success story of autism employers such as Spectrum Designs Foundation and was produced by Mesh Omnimedia.

She also was interviewed by Michael Pollan in his best-selling book, The Omnivore's Dilemma, in which she discussed the livestock industry.

Folk-punk band AJJ, formerly known as Andrew Jackson Jihad, included two songs called "Temple Grandin" and "Temple Grandin Too" on their LP Christmas Island.

In 2018, Grandin was profiled in the book Rescuing Ladybugs by author and animal advocate Jennifer Skiff as a "global hero" for "standing her ground and fighting for change after witnessing the extreme mistreatment of animals" used in farming.

Publications

  • Emergence: Labeled Autistic (with Margaret Scariano, 1986, updated 1991), ISBN 0-446-67182-7
  • The Learning Style of People with Autism: An Autobiography (1995). In Teaching Children with Autism : Strategies to Enhance Communication and Socialization, Kathleen Ann Quill, ISBN 0-8273-6269-2
  • Thinking in Pictures: Other Reports from My Life with Autism (1996) ISBN 0-679-77289-8
  • Developing Talents: Careers for Individuals with Asperger Syndrome and High-Functioning Autism (2004). ISBN 1-931282-56-0
  • Animals in Translation: Using the Mysteries of Autism to Decode Animal Behavior (with Catherine Johnson, 2005), ISBN 0-7432-4769-8
  • The Unwritten Rules of Social Relationships: Decoding Social Mysteries Through the Unique Perspectives of Autism (with Sean Barron, 2005), ISBN 1-932565-06-X
  • The Way I See It: A Personal Look At Autism And Asperger's (2008), ISBN 9781932565720
  • Animals Make Us Human: Creating the Best life for Animals (with Catherine Johnson, 2009), ISBN 978-0-15-101489-7
  • The Autistic Brain: Thinking Across the Spectrum (with Richard Panek, 2013), ISBN 978-0-547-63645-0
  • The Loving Push: How Parents and Professionals Can Help Spectrum Kids Become Successful Adults (with Debra Moore Ph.D., 2016), ISBN 978-1941765203
  • Genetics and the Behavior of Domestic Animals, Second Edition (with Mark Deesing, 2013), ISBN 978-0-12-394586-0
  • Improving animal welfare: a practical approach (2010). ISBN 978-1-84593-541-2, CABI, UK
  • Livestock handling and transport (2007). ISBN 978-1-84593-219-0. CABI, UK.
  • Grandin, T. 2013. Making slaughterhouses more humane for cattle, pigs, and sheep. Annual Review of Animal Biosciences. 1:491-512.
  • Grandin, T. 2001. Cattle vocalizations are associated with handling and equipment problems at beef slaughter plants. Applied Animal Behaviour Science. Volume 71, 2001, Pg. 191–201.
  • Grandin, T. 1996. Factors That Impede Animal Movement at Slaughter Plants. Journal of the American Veterinary Medical Association. 209 No.4:757-759.
  • Grandin, T. 1995. Restraint of Livestock. Proceedings: Animal Behaviour Design of Livestock and Poultry Systems International Conference (pages 208–223). Published by: Northeast Regional Agriculture Engineering Service. Cooperative Extension. 152 Riley – Robb Hall, Ithaca, New York, 14853 USA.
  • Grandin, T. 1994. Euthanasia and Slaughter of Livestock. Journal of American Veterinary Medical Association. Volume 204:1354-1360.
  • Grandin, T. 1989 (Updated 1999). Behavioral Principles of Livestock Handling. Professional Scientist. December 1989 (pages 1–11).
  • Calling All Minds: How to Think and Create Like an Inventor (2018) ISBN 1524738204

Lie point symmetry

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